As a parent that has been on this journey for several years now, I can't stress enough about the importance of advocating for your child and letting the provider know that the system they have in place is not working for you and your family. No one knows what your child needs better than you, so write down, email, or even tell your workers what you would like to see in the services they are providing. Life is too short and our children are too important to just let the system not work for them in their favor! We even talk about this topic in our monthly support group meeting, so feel free to join us to see how we can help you!